Introduction

Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.



My gals, Denae (left) & Kendra

My boyz, Grayson (left) and Kroydon

I have breast cancer and so...

This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.

Accolades

Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.



Breakdown of Herceptin costs

Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -

Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg

Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60

So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!

02 July 2008

Week 3, radiotherapy

Regularly I feel nauseated, there is tingling and numbness in my right arm (which is not from radiotherapy and more than likely from surgery and chemotherapy), tenderness around my right breast and for crying out loud I have an almost rock hard cement pocket for a breast but it is normal while going through radio and normally subsides and goes back to normal sometime after radio is finished - phew coz it cost a bit that new boob job!

My longsuffering hubby or my darling mate Treez pick me up from either work or home and drive me to and from radiotherapy treatment. I had all intentions of driving myself there and back BUT am very grateful that I don't (and so will Auckland commuters) because immediately after treatment I am doggone tired and can bearly keep my eyes open!

The reason for the fatigue I have been told is because radiotherapy kills the cancer cells from the original site but also kills off the good healthy cells (didn't that think I would have any left after chemo) so my body is using a lot of energy making good healthy cells again. When I get home my family no longer ask what's for dinner because I have already hit the pillow and fallen off to sleep.
I listen to my body a lot more since cancer because this is my second shot at life so I want to preserve and look after me a lot more. It's not selfish and I've learnt to be much kinder to myself.
Far out it took cancer for me to treat me right, look after me better and to be much kinder to me and while it might appear to be all about me it isn't really in the end because if I am not well then my family suffers. So if you look after numero uno, numero uno can be there for everyone else.
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