Introduction
Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.
My gals, Denae (left) & Kendra
My boyz, Grayson (left) and Kroydon
I have breast cancer and so...
This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
Accolades
Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.
Breakdown of Herceptin costs
Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Blog Archive
Showing posts with label Cancer Services. Show all posts
Showing posts with label Cancer Services. Show all posts
20 March 2008
Look Good Feel Better
A couple of months ago my darling friend and I were privileged to have attended a wonderful workshop, Look Good Feel Better which was held at the Cancer Society in Auckland.
Imagine a room full of complete strangers with cancer sporting either scarves, bandanas, turbans or naked (beautiful and bald) meeting for the very first and perhaps the last time being pampered for free by generous volunteers who wanted to make the day special for us.
In between much laughter and talking, step by step we're taken through a face cleansing regime followed by a make up session helped along by experienced volunteers.
As I glanced around I was once again reminded of the cruelty of cancer and because of cancer there I was with women from all walks of life who were being inconvenienced by the disease. I could silently relate to each women one way or another and when I took off my turban to reveal my patchy scalp not one women looked at me in horror. I felt so at home and comfortable in a room full of strangers. Only a woman who has cancer can know and understand the feeling of belonging to a 'sisterhood' such as this. I met some more wonderful women that day and I was so proud to be in such wonderful company even it is because of cancer.
At the end of the session we all got to take home a goodie bag full of expensive cosmetics, some wonderful memories and snapshots of history for ourselves.
Walking out to the foyer I hardly recognise any of the women who are now completely made up sporting sexy new wigs shooting off to lunch.
I loved the experience and like every other women who has attended this workshop am grateful to the woman who started it off many years ago.
(PS: as you can see I am still wired from the steriods and am still zinging out at 5:15am...!!)
Imagine a room full of complete strangers with cancer sporting either scarves, bandanas, turbans or naked (beautiful and bald) meeting for the very first and perhaps the last time being pampered for free by generous volunteers who wanted to make the day special for us.
In between much laughter and talking, step by step we're taken through a face cleansing regime followed by a make up session helped along by experienced volunteers.
As I glanced around I was once again reminded of the cruelty of cancer and because of cancer there I was with women from all walks of life who were being inconvenienced by the disease. I could silently relate to each women one way or another and when I took off my turban to reveal my patchy scalp not one women looked at me in horror. I felt so at home and comfortable in a room full of strangers. Only a woman who has cancer can know and understand the feeling of belonging to a 'sisterhood' such as this. I met some more wonderful women that day and I was so proud to be in such wonderful company even it is because of cancer.
At the end of the session we all got to take home a goodie bag full of expensive cosmetics, some wonderful memories and snapshots of history for ourselves.
Walking out to the foyer I hardly recognise any of the women who are now completely made up sporting sexy new wigs shooting off to lunch.
I loved the experience and like every other women who has attended this workshop am grateful to the woman who started it off many years ago.
(PS: as you can see I am still wired from the steriods and am still zinging out at 5:15am...!!)
16 January 2008
Cancer Society
The Cancer Society provide so many services which are mostly free to those who have been diagnosed with cancer.
Look Good, Feel Better; sleep management classes and aromatherapy massages ($10 for an hour) just to name but a few. While I have not attended any of these yet, my friend and I are booked to attend these and many more over the next couple of months.
Call them or check out their website for services that will suit the needs of so many that have been affected by cancer one way or another.
Look Good, Feel Better; sleep management classes and aromatherapy massages ($10 for an hour) just to name but a few. While I have not attended any of these yet, my friend and I are booked to attend these and many more over the next couple of months.
There are also counselling services available for your family and friends.
Call them or check out their website for services that will suit the needs of so many that have been affected by cancer one way or another.Cancer Helpline 0800 800 426
or
(There are more sites you can visit by scrolling further down the left side of my blog)
09 January 2008
A day of mixed blessings
Hubby and I attended chemo orientation today which was extremely informative.
Cancer outpatients are each given cancer packs which include some of the following -
- information sheets on chemo drugs
- cancer support contact details
- information sheet on side effects
- wig form
- Look Good, Feel Better info and form
I cast a curious glance around the room and note cancer has ensnared lives from all walks of life, all age groups and different ethnic backgrounds. Cancer is not discriminative.
Approximately 2 hours later I leave armed with more knowledge ready for the next cancer related appointment. Friday 11 January I am off to meet the radiologist to discuss radiotherapy treatment.
Hours later I am making calls to Kawerau and Ohope to thank more wonderful people for their huge donation to my cause.
Thank you and much love to the Leitner family, the Stewart family and the Bonne family.
Cancer outpatients are each given cancer packs which include some of the following -
- information sheets on chemo drugs
- cancer support contact details
- information sheet on side effects
- wig form
- Look Good, Feel Better info and form
I cast a curious glance around the room and note cancer has ensnared lives from all walks of life, all age groups and different ethnic backgrounds. Cancer is not discriminative.
Approximately 2 hours later I leave armed with more knowledge ready for the next cancer related appointment. Friday 11 January I am off to meet the radiologist to discuss radiotherapy treatment.
Hours later I am making calls to Kawerau and Ohope to thank more wonderful people for their huge donation to my cause.
Thank you and much love to the Leitner family, the Stewart family and the Bonne family.
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