Introduction

Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.



My gals, Denae (left) & Kendra

My boyz, Grayson (left) and Kroydon

I have breast cancer and so...

This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.

Accolades

Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.



Breakdown of Herceptin costs

Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -

Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg

Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60

So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Showing posts with label Chemotherapy. Show all posts
Showing posts with label Chemotherapy. Show all posts

05 May 2008

Tomorrow Tomorrow

With much pride I will announce at reception tomorrow "Hi I'm Sarvs Falefitu and I have chemo today" and I will wait happily for as long as it takes.
When my oncology nurse calls me from the waiting room at Daystay Oncology I will float to my designated bed or lazy boy.
When I am asked to soak my arm in hot hot water I will grit, bear and soak longer than normal grinning from ear to ear.
If my oncology nurse has trouble finding a good vein I will remember the white sands and blue clear waters of Savai'i back in 2005.
Time will not bother me in the slightest tomorrow even if chemo takes longer than normal and I get caught in the traffic on the way home. I will take it all in my stride.

I haven't thought much about tomorrow since January 15 2008 and right now I feel like a child ready to board a plane for a holiday.
Tomorrow has taken a long time to get here.

Tomorrow I will have my last chemo treatment, ever. It's enough to rip me nightie and enough to make me cry. ROLL ON TOMORROW!!!

20 March 2008

I am FECing it now...

My cousin's wife Lizzie who is heavily pregnant was my companion for chemo cocktail number 4. It was a mini girls day out catching up in between flicking through gossip mags, munching on lollies and nuts, drinking coffee, laughing, texting, looking at photos and swapping hilarious hen's night stories - the normal things gals do when they get together except we're at the Cancer and Blood Services, Day Stay Oncology Unit. It was perfect that morning having Lizzie there as the morning started off badly. Soaking my arm in hot water twice I knew that it wouldn't be smooth sailing. The first attempt at finding a vein was very painful, it was like someone had crawled into my arm and was hammering the lure through my very thin collapsed vein with force; the second attempt was still painful except no lingering hammering. Fifteen minutes later we discover the saline isn't getting through my vein but we persevere because I didn't want another attempt at finding another. I should've just let Beth find another then as ten minutes after administering the first of five chemo syringes we have to stop, pull out the lure and call another nurse in to find another decent vein to be able to continue with the FECing regime. They have a unwritten law in oncology, two attempts only and then call another nurse. The second nurse Roz strikes it lucky on the first attempt and finally I can get FECing.
For the FEC regime, there's three syringes of Fluorouracil (red drug), then two syringes of Epirubicin (clear drug) . These drugs are manually administered very slowly by Beth via the lure. It's then finished off with a full bag of Cyclophosphamide which is done via IV. I belched through most of the chemo which I found out was normal with this regime..so lady like, NOT!
Immediately after I literally felt drunk (or drugged), the fatigue and the nausea settled in and each time I would get up I was dizzy. This continued through to day two.
Premeds are taken slightly different with this regime too. Day two after chemo you start your lovely array of steriods and continue for four days. I feel like a high as a kite African elephant calf climbing the walls (ghastly sight and of course absolutely impossible but never under estimate the effects of steriods...!). Tomorrow I will probably be a depressed calf stomping round throwing my weight around (and there is a lot of that lately). Day after that I will be moody as heck and everyone will want to avoid me and then I will start getting all paranoid and start crying that nobody loves me anymore...blah blah blah. Then the day after that I will probably be as high as a kite, slightly depressed, moody as heck, paranoid and an absolutely exhausted FECing woman going through chemo - all this on top of the fatigue, nausea and dizziness. I could be wrong....we play it by ear but I am mean who FECing knows.

15 January 2008

First Chemo Cocktail

It's sweltering outside but there's a chill in the air in one particular vehicle from the passengers side as it speeds down the motorway to make a 10:15am 'chemotherapy' appointment. The clock reads 10:06am.
At 10:11am the vehicle is parked up and the morning then becomes history as a relieved but rather frazzled virgin chemo cancer patient enters the Cancer and Blood Centre, Auckland Hospital. One soy chai latte later (the things you give up and take up after cancer) I'm standing with my hand soaking in a tub of hot water - as hot as one can take. This softens the skin and helps the oncology nurse (Elaine) find a nice vein. Two attempts later and we are in much to my relief.
Basically one is wired up to a drip for as long as it takes to get the chemo drugs flushed through your body. Hubby and I left almost 5 hours after we arrived.
At the minute (an english expression Elaine uses frequently) the side effects are tolerable - sore joints, mild and short bouts of nausea, stomach pains, swollen feet and arm and tiredness.
My bed was opposite a mature gentleman who has throat cancer and has to have treatment 3 times weekly so I am not complaining about my treatment just stating facts.
Rating: it would have to be 10/10. I was given first class treatment in the public system. It really is the people at Cancer and Blood Centre, Auckland Hospital that make all the difference.
Thanks Elaine, Georgia & Donna for making my first chemo cocktail a breeze and to hubby for putting up with me...LOL!!!


21 December 2007

Chemo cocktail (my cancer treatment)

Ingredients:
3 doses Taxotere
3 doses Herceptin
3 doses Fluorouracil
3 doses Epirubicin
3 doses Cyclophosphamide



How to apply:

1. Take 1 dose each of Taxotere and Herceptin. Administer every three weeks, three times ONLY.
2. Take 1 dose each of Fluorouracil, Epirubicin and Cyclophosphamide. Administer every three weeks, three times ONLY.

To begin mid-late Jan 08.
Once chemo cocktail has ended begin round of radiotherapy.
Instructions for radiotherapy to follow in the new year after visit to radiotherapist.

http://www.medsafe.govt.nz/Consumers/CMI/t/taxotere.htm
www.breastcancernetwork.org.nz/pages/herceptin_FAQ.html
www.cancerbackup.org.uk/Treatments/Chemotherapy/Individualdrugs/Fluorouracil
www.cancerbackup.org.uk/Treatments/Chemotherapy/Individualdrugs/Epirubicin
www.cancerbackup.org.uk/Treatments/Chemotherapy/Individualdrugs/Cyclophosphamide