Introduction
Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.
My gals, Denae (left) & Kendra
My boyz, Grayson (left) and Kroydon
I have breast cancer and so...
This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
Accolades
Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.
Breakdown of Herceptin costs
Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Blog Archive
Showing posts with label Family Affairs. Show all posts
Showing posts with label Family Affairs. Show all posts
21 May 2008
My blessings
I first told my chillens on Sunday 21 October that cancer would never be an excuse to give up nor did cancer deserve pity.
My oldest took me to hospital the first time round when I got sick after chemo.
He called in sick at work that day advising his supervisor that he was in hospital with me.
The next day when he got back to work the ladies asked after me. My son replied that I was still in hospital. Naturally they asked him if I was okay.
My son replied very matter of fact 'oh she has cancer' and then continued on with his job. Mouths just dropped. They had no idea.
When I got home from hospital I thought I would sleep for the rest of the week. After 2 days of sleeping my son sat at the edge of my bed and told me quite sternly that I couldn't sleep the rest of my life away so I was to get up and he was taking me to the zoo for a couple of hours.
I got up quite embarrassed, dressed and enjoyed an afternoon at the zoo.
While tackling the chemo effects one time I told my younger son out of frustration over the fatigue and body pains that I really hated my life at that moment. He told me off and said that I would need to be positive to get through that moment. It turned into a lecture and again I was embarrased with my outburst.
My girls have also put me back on track on days where I could have shut the whole world out of my room and slept on reminding me that I wasn't to let the cancer or chemo get the better of me.
One day daughter 2 came home with a programme that had been offered to her.
The programme provided a counsel like service for troubled and/ or traumatised teenagers. She asked me why I thought they gave it to her. I replied it would be because I have cancer.
She looked at me like really that is not a good enough excuse and then walked off to make herself a hot chocolate still baffled. The pamphlet lay around the house for a couple of days ignored and then I binned it.
Parents with cancer your acceptance of your diagnosis, your positive attitude about your life, your open conversations and discussions about how you are feeling at any given time and your love of life because of them certainly helps the healing process.
My oldest took me to hospital the first time round when I got sick after chemo.
He called in sick at work that day advising his supervisor that he was in hospital with me.
The next day when he got back to work the ladies asked after me. My son replied that I was still in hospital. Naturally they asked him if I was okay.
My son replied very matter of fact 'oh she has cancer' and then continued on with his job. Mouths just dropped. They had no idea.
When I got home from hospital I thought I would sleep for the rest of the week. After 2 days of sleeping my son sat at the edge of my bed and told me quite sternly that I couldn't sleep the rest of my life away so I was to get up and he was taking me to the zoo for a couple of hours.
I got up quite embarrassed, dressed and enjoyed an afternoon at the zoo.
While tackling the chemo effects one time I told my younger son out of frustration over the fatigue and body pains that I really hated my life at that moment. He told me off and said that I would need to be positive to get through that moment. It turned into a lecture and again I was embarrased with my outburst.
My girls have also put me back on track on days where I could have shut the whole world out of my room and slept on reminding me that I wasn't to let the cancer or chemo get the better of me.
One day daughter 2 came home with a programme that had been offered to her.
The programme provided a counsel like service for troubled and/ or traumatised teenagers. She asked me why I thought they gave it to her. I replied it would be because I have cancer.
She looked at me like really that is not a good enough excuse and then walked off to make herself a hot chocolate still baffled. The pamphlet lay around the house for a couple of days ignored and then I binned it.
Parents with cancer your acceptance of your diagnosis, your positive attitude about your life, your open conversations and discussions about how you are feeling at any given time and your love of life because of them certainly helps the healing process.
12 January 2008
The cruellest conversation
No one and nothing can ever prepare you for when you have to tell your children. My husband pleaded with me after my diagnosis to tell our children sooner rather than later. When I finally I brought myself to have one of the cruellest conversations a parent ever has to have with their children everything I rehearsed went out the window.
Sunday, 21 October 07.
When the father of your children is seated next to you, unable to contain his tears and you see the look of confusion and concern on their faces, the task ahead is near impossible.
I search for something in their eyes and to this day I have no idea what it was I was searching for, possibly an easy way out.
"I have to go away for a while to have an operation."
In unison my children ask why. After what seems like an eternity I said, "I have breast cancer."
Grayson looked at me and said, "oh gay mum" (another teenage saying that makes no sense however I understand). Tearfully I look at him, wishing that I was joking, and tell him that I'm being serious. Tears of shock, astonishment, bewilderment, fear and some hurtful monents of silence later Grayson asks me "Will you have cancer forever mum?"
Sunday, 21 October 07.
When the father of your children is seated next to you, unable to contain his tears and you see the look of confusion and concern on their faces, the task ahead is near impossible.
I search for something in their eyes and to this day I have no idea what it was I was searching for, possibly an easy way out.
"I have to go away for a while to have an operation."
In unison my children ask why. After what seems like an eternity I said, "I have breast cancer."
Grayson looked at me and said, "oh gay mum" (another teenage saying that makes no sense however I understand). Tearfully I look at him, wishing that I was joking, and tell him that I'm being serious. Tears of shock, astonishment, bewilderment, fear and some hurtful monents of silence later Grayson asks me "Will you have cancer forever mum?"
What he really meant was, was I dying?
I was honest and told him that I really didn't know (which of course I really didn't know much about treatment) but assured them all that they would be kept in the loop but only if they wanted to know.
The silent tears told me that it was enough information for now.
Telling my children early on in the piece protected them from finding out from someone else which could have caused more heartbreak. Talking to them individually on a regular basis helps me gage where they at with 'mum's breast cancer'.
They are not perfect but they are fantastic children. They are the reasons why I get up in the mornings and why I won't give up hope.
I was honest and told him that I really didn't know (which of course I really didn't know much about treatment) but assured them all that they would be kept in the loop but only if they wanted to know.
The silent tears told me that it was enough information for now.
Telling my children early on in the piece protected them from finding out from someone else which could have caused more heartbreak. Talking to them individually on a regular basis helps me gage where they at with 'mum's breast cancer'.
They are not perfect but they are fantastic children. They are the reasons why I get up in the mornings and why I won't give up hope.
Subscribe to:
Posts (Atom)
