Introduction
Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.
I have breast cancer and so...
This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.
Accolades
Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.
Breakdown of Herceptin costs
Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg
Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60
So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!
12 May 2008
Deja vu
So one week ago today I was sitting outside oncology an hour and half before my chemo appointment grinning from ear to ear gearing to get my last chemo done and dusted. As predicted I felt rotten without too much delay shortly after.
3 days after my last chemo I'm being wheeled back to Ward 64 for a 5 day stay. Deja vu.
Ward 64 itself is actually dotted with lovely nurses who you welcome to your bedside at midnight and sparrows fart to do your 'obs' because of their nightingale bedside manners. It's also dottered with young looking doctors who I would imagine entered medical school fresh out of nappies. I had a gorgeous looking Asian doctor who looked all of 20 trying to find out why I was there. In the middle of my heart wrenching explanation, she snorted up a honking load of snot without blinking an eye and looked at me as if to say 'continue please'...um it didn't quite go with the beautiful skin, exquisitely applied make up, expensive perfume, the trendy hair do and the clothes.
As expected you get chatting to your roomies about your medical rap sheet (but you wait for the green light from them first) and listen intently to theirs for hope and answers.
Majority of my rap sheet conversations have always highlighted positives in my own experience.
Be careful when you talk to anyone with life threatening diseases that you don't unconsciously talk them into negativity by assuming you know what they are feeling.
When someone told me that they know I would be finding hospitals depressing I understood that was their take. Hospitals are not depressing, it can be people's attitudes.
One of my roomies unfortunately started grating on me, the second to last day of my stay. That was after hearing her rap sheet told to every nurse, every visitor and even our visitors time and time again.
Swapping rap sheets is almost an art because you must be able to do it without the 'pity me' tune. Plus then you have to remember that there are only curtains to block out the doctors version of your situation - as I discovered can be totally different to what this roomie was rapping to us!
Hosptial food leaves much to be desired and I am now officially petrified of needles but generally I feel safe and know I am being fussed over with good intentions. I mean there really is no other place where I can sit in a cafe over a coffee or browse through mags in a shop in my blue slippers, striped pj's and pink gown completely bald without being put in a straight jacket and arrested.
Roomie A started to lose her hair today. I know the emotions that go with it because I have been there and so it was great to be able to share with her mostly because she wanted to know. Not dwelling on it Roomie A booked an appointment with the wig place to shave it off and grab her wig.
Roomie B was given bad news today that no cancer patient wants to hear but her optomistic attitude was one of well I won't be hanging around here for a decision I got things to do! I've lived a good life and I will continue to do so.
Roomie C I hope will be able to rap a more positive one to others she engages with in life.
Roomie D, that's me. I turned 40 last month and decided to postpone it until next year. I can't wait!!!
3 days after my last chemo I'm being wheeled back to Ward 64 for a 5 day stay. Deja vu.
Ward 64 itself is actually dotted with lovely nurses who you welcome to your bedside at midnight and sparrows fart to do your 'obs' because of their nightingale bedside manners. It's also dottered with young looking doctors who I would imagine entered medical school fresh out of nappies. I had a gorgeous looking Asian doctor who looked all of 20 trying to find out why I was there. In the middle of my heart wrenching explanation, she snorted up a honking load of snot without blinking an eye and looked at me as if to say 'continue please'...um it didn't quite go with the beautiful skin, exquisitely applied make up, expensive perfume, the trendy hair do and the clothes.
As expected you get chatting to your roomies about your medical rap sheet (but you wait for the green light from them first) and listen intently to theirs for hope and answers.
Majority of my rap sheet conversations have always highlighted positives in my own experience.
Be careful when you talk to anyone with life threatening diseases that you don't unconsciously talk them into negativity by assuming you know what they are feeling.
When someone told me that they know I would be finding hospitals depressing I understood that was their take. Hospitals are not depressing, it can be people's attitudes.
One of my roomies unfortunately started grating on me, the second to last day of my stay. That was after hearing her rap sheet told to every nurse, every visitor and even our visitors time and time again.
Swapping rap sheets is almost an art because you must be able to do it without the 'pity me' tune. Plus then you have to remember that there are only curtains to block out the doctors version of your situation - as I discovered can be totally different to what this roomie was rapping to us!
Hosptial food leaves much to be desired and I am now officially petrified of needles but generally I feel safe and know I am being fussed over with good intentions. I mean there really is no other place where I can sit in a cafe over a coffee or browse through mags in a shop in my blue slippers, striped pj's and pink gown completely bald without being put in a straight jacket and arrested.
Roomie A started to lose her hair today. I know the emotions that go with it because I have been there and so it was great to be able to share with her mostly because she wanted to know. Not dwelling on it Roomie A booked an appointment with the wig place to shave it off and grab her wig.
Roomie B was given bad news today that no cancer patient wants to hear but her optomistic attitude was one of well I won't be hanging around here for a decision I got things to do! I've lived a good life and I will continue to do so.
Roomie C I hope will be able to rap a more positive one to others she engages with in life.
Roomie D, that's me. I turned 40 last month and decided to postpone it until next year. I can't wait!!!
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4 comments:
Hey there, hope you are back home and are doing okay??
Glad to hear the regular Chemo is all finsihed. I check into your blog daily to see how you are doing. Hope all is well.
Take care
Kathryn
Hi Sarvs!
This is Lisa Hosker from Kelston Boys'. Some of the guys told me after their headshaving to check out your blog, and I just wanted to leave a comment and let you know that you are SUCH an inspiration! The guys may have told you that I have been battling breast cancer myself for the past few months, and reading your blog has made me laugh, and cry..often simultaneously! As you say, there are many positives to be found in this disease, although I know that that's not always easy. Like you, I have been lucky to have people around me that can appreciate the humour to be found, even in something as serious as cancer. Keep it up...You're a legend!
Look after yourself..
Lisa
XXX
PS I owe you another Thank You!! It is SO nice to have longer hair than some of the boys again!!!
Hi Kathryn
First day back at work today and I was tired by 11am!!
I am learning to take care of me so I can take of 'them'..!
I loved your cupcakes and so did the others that were fortunate enough to have one!
We are holding a concert 21 June...and I will be so forward to ask if you would or could make your cupcakes for us to sell there? I will not in anyway be offended if you couldn't. I also have your container here still.
Take care
Sarvs
Hi Lisa
I was sad to hear about your own experience and would love to get together over coffee.
Give me a call anytime and we could compare wigs...hahahaha!! I actually wore mine for 5minutes...!!
Peace and love
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