Introduction

Sarvs Falefitu is a 40year old NZ born, Auckland bred Samoan/ Niuean. Sarvs is mother to four teenagers (Kroydon 19 years, Denae 16 years, Kendra 14 years, Grayson 13 years) and has been married to her 'Samoan warrior' for 19 1/2 years.



My gals, Denae (left) & Kendra

My boyz, Grayson (left) and Kroydon

I have breast cancer and so...

This blog has been created in the hopes that I could raise awareness of this 'evil influence that spreads dangerously', according to Collins English Dictionary, Compact Edition, to fundraise to cover the majority of my Herceptin treatment and hopefully this might help other women even in the tiniest way who might be living and dealing to breast cancer also.
I have Grade 2, HER2 positive type cancer and my cancer has moved away from the primary spot and invaded other parts of my body via my lymph vessels and blood vessels. Along with chemotherapy and radiotherapy I will also need Herceptin. NZ only funds Herceptin for 9 weeks but a full 12 months is recommended. I have opted to take the recommended 12 months and it will cost exactly $96,273.60. While some specialists are 'comfortable' with 9 weeks of Herceptin, I am not. I want to attend my teenagers graduations. I need to wave them goodbye when they go on their OE's. I wish to witness them all walk down the aisles, be present at the births of my grandchillens and finally do my big OE with my hubby too - of course without the grandchillens!!! Clearly I have far too much to live for and I implore anyone with time to please support my fundraisers or send any fundraising ideas our way.
Your support will make a lasting difference to my quality of life and I sincerely thank you all in advance for your love and support.

Accolades

Sarvs wishes to acknowledge the amazing staff at St Marks Clinic who at the early days of her breast cancer diagnosis helped and coached her through one of the darkest days of her life.Thank you Michelle, Beverley, Jenny, Tracey, the wonderful surgeons Stephen and Stan. Most importantly Sarvs would like to acknowledge 'Johnny' for having the foresight to establish a beautiful haven such as St Marks Clinic many years ago for women such as herself.



Breakdown of Herceptin costs

Since day dot Dr Mike McCrystal my oncologist has been apologetic of the horrendous Herceptin costs for HER2+ women. Nothing to apologise about Mike it is out of your hands and ours however look closely at what Pharmac and NZ Government are blissfully content in handing to a cancer patient and their loved ones -

Loading dose cost: (1 loading treatment)
Drug cost, delivery (+GST) 500mg $7018.65
Nursing $250.00
Medical $350.00
Consumables $35.00
Hospital charge $100.00
GST $969.20
Sub-total $8722.85 for loading dose at 8mg/kg

Maintenance dose cost: (13 maintenance treatments)
Drug cost, delivery (+GST) 370mg $5251.35
Nursing $250.00
Medical $350.00
Consumables $350.00
Hospital charge $100.00
GST $748.30
Total $6734.65 maintenance dose at 6mg/ kg
Overall total for full course: $96,273.60

So dealing with the diagnosis of breast cancer, losing a breast, having major surgery, being put through chemo treatment, being hospitalised 3 times, going through radiotherapy, getting through the remission period, dealing with the emotional side of this all and then having to fundraise endlessly for Herceptin do you think Pharmac or NZ Government have the right to play God with our lives?!!

02 May 2008

What is Pulmonary Embolus?

I got the fact that I had (positive talk) cancer. Understood the need for chemo. Experienced the side effects both physically and mentally, trying to be all things to all people and realised yet again 'Sarvs you are NOT superwoman, bring it down girlfriend'.
The week after my 5th FEC regime I was hospitalised again. It's a sad day when the nursing staff recognise you up at Ward 64 - my 3rd home after oncology daystay unit and the bleeding room (blood lab).
After experiencing severe fatigue (where getting out of bed was impossible most days), dizzy spells, nausea, severe headaches I put it down to chemo side effects. I have a very high pain tolerance (apart from the blimin needles) so I played things down in my head and only when I had terrible stabbing chest pains that reduced me to tears did I get on the blower and called Acute Oncology who informed me to get to hospital, like yesturday!
Lucky the pain reduced me to tears actually because after a sh***y ride to hospital, an x-ray to eliminate a chest infection and a CT scan to detect clots I found out after being admitted to Ward 64 I have PULMONARY EMBOLUS in my right lung so I needed to be jabbed in the stomach with Clexane (blood thinner) immediately and every 12 hours for the next 2 weeks.
I don't do things by halves that's for bloody sure I thought as the nurse jabbed me.
A pulmonary embolus occurs when part of the blood clot somewhere else in the body breaks off and travels to the lungs. It could come from a deep vein thrombosis in the leg or pelvis. The floating piece of clot blocks the blood supply to the lungs. A large one can cause breathing difficulties, fainting spells (hello sound familiar?!) and can even be fatal.
Again not to be outdone Dr Tim from the Haematology Unit said 'you are functioning on about a quarter of your right lung with the rest of it blocked; so your clot is very large'. Wow that is some freaky stuff?!!
I am self medicating once a day now for the next 6 months to thin the clot. Grab the flab and jab (into the stomach), fortunately I have rolls of the flab, so no problemo!
Naturally one asks why clots occur and I was given a number of reasons. The thrombosis specialist said 'people with cancer who have had major surgery are likely to have blood clots'. I guess that's me.
The side effects of the treatment are nose bleeds, bleeding in urine or bowel motions, severe nausea, vomiting, diarrhoea or abdominal pain, severe headache or internal bleeding.

I am still going through the mill but there is light as I go through it, just a bit dim at the moment but it gets brighter as I continue to kick cancer!

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